The Cause – Legislative Efforts
The 1Voice Foundation co-founded the Florida Coalition for Childhood Cancer, an organization that unites all agencies who support childhood cancer in the state of Florida and is part of the National Coalition for Childhood Cancer and The Alliance for Childhood Cancer, a national initiative for collaboration.
Each year, Mary Ann Massolio and fellow pediatric oncology families travel to Capitol Hill and testify before Congress and the Senate regarding pediatric cancer issues while asking for their support in an increase in funding for pediatric cancer research.
On February 27, 2017, Congress reintroduced the Research to Accelerate Cures and Equity (RACE) for Children Act (S 456, HR 1231) to bring new therapies to children with cancer. The RACE for Children Act addresses the pediatric cancer innovation gap by dramatically increasing pediatric oncologists’ access to novel and promising new cancer therapies, with industry funding. The RACE for Children act provides that the FDA would have the authority to require any new cancer drug to be studied in pediatric cancers for which the molecular target of the cancer drug is relevant.
The 1Voice Foundation Legislative Committee testified before Congress and the Senate on Tuesday, May 2, 2017 for Childhood Cancer Action Days on the Hill.